Wednesday, September 30, 2009

Who's in trouble?

So today in school, the teacher had to get onto my classmates for being to loud (at least I think that is what is was for). Of course, I wasn't being too loud because well, I can't talk. But as she was instructing them to quiet down, I decided that it was pretty funny and started laughing. I probably should of gotten into trouble for laughing but I didn't. Who can discipline me when I have a smile like this.
I tend to do this at home too. Mom and dad may try to discipline me, especially when I chew on my shirts. They will try and tell me to stop chewing on my shirt and then again in a stern voice. I laugh every time. Anytime someone tries to be serious, it cracks me up. I just can't help it.

Sunday, September 27, 2009

Reading Time

I wanted to share one of my all time favorite books with everyone. It is called Llama, Llama Red Pajama.
Mom reads this book to me almost every night. It is a bedtime story about a Baby Llama who gets a good night kiss from his Mama Llama who believes everything is alright. But is it? NO! At least Baby Llama doesn't think so...and soon his whimpers turn into hollers. It's an all-out llama drama. Until Mama returns and makes everything alright with an extra good night kiss. I absolutely love this book. It is so funny, I sometimes get so excited before bedtime which may not be the best, but mom loves to see my reactions (there are only a few books that I pay attention too and act interested in). So I guess she doesn't mind when I get this way before bedtime.

I have also been participating a little more when reading books. I have started to actually hold one side of the book and occasionally will turn the page (with a little help). That is very exciting news.

Monday, September 21, 2009


So, Sunday, I participated in my first Hydrocephalus walk. It was a great success. There were many people who showed up considering the weather didn't cooperate. I guess I shouldn't complain, it didn't rain when we were actually walking. They had several different activities, face painting, balloon making and there were even clowns there. Here's some pictures of the day. If you would like to get a closer look at any of them, just click on the picture.
The Family.

My Aunt Jen even came to support me.

This is everyone there that had hydrocephalus. There was a variety of ages, from infant to adult.

My 1 hour massage I won as a door prize and mom better not steal it from me, hehe. There were several door prizes given away and the one that we win is to a massage place that is 2 hours from our home.

I really am not sleeping, my eyes are just closed.

Sunday, September 20, 2009


Okay, so it has been awhile since my last update and I have a lot of catching up to do. Let's start with my trip to the fair last week. The local fair was in town and I didn't just get to go once, not twice, but three different times. I first went with my aunt, uncle and cousins; then I got to go with my classmates on our field trip and then again with mom and dad. I had a good time each time. I saw a lot of animals and I even got to pet a goat. I got to ride the carousel (I wanted to do a few other rides but I wasn't allowed because of my height). I especially wanted to slide down this HUGE super slide but it was a no go. I saw pictures of my friend, Cayman, slide down it and got all excited, that I could do it too. But the guy said I was too small; even sitting on my moms lap, he wouldn't let us do it. So I was bummed about that and a little jealous of Cayman because I wanted to do it too. Maybe next year. I really enjoyed riding the carousel, so much I got to ride it 4 different times. Stay tuned for tomorrow about the Hydrocephalus Walk.
My preschool class.

Me petting a goat.

Ms. Lisa and I.

Ms. Geannie and I.

Riding the carousel with dad.

Riding the carousel with mom.

Mom and dad even bought me a lightsaber. (I love things that light up).

Wednesday, September 09, 2009

Embarrassing moment

So yesterday I experienced probably one of my biggest embarrassing moment. It was a typical day, mom dropped me off at the babysitters and went on her way. Then I go to preschool from 12-3:15, the bus comes and picks me up and drops me back off at the babysitters after school. It usually goes pretty smoothly, however yesterday was a little different. Ms. Becky (my babysitter) fed me lunch, changed my diaper and put my foot splints and shoes on and then it was time to wait for the bus. It was about time so Ms. Becky picked me up and I guess within the little bit of time we were sitting there waiting, I decided to have a huge bowel movement. It was so bad that it was all up my leg and everywhere (very gross). Luckily the bus was running a little late, so Ms. Becky got my diaper changed but didn't get a clean pair of shorts on because the bus was waiting by this time. I also need to point out that it is not an easy task changing my diaper with my foot splints and shoes on either. So now on to my embarrassing moment. I WENT TO SCHOOL IN MY DIAPER!!! Ms. Becky threw a clean pair of shorts in my book bag and was going to have them dress me once I got to school, since I was already late. Even though it was mostly my fault and bad timing, I made it through the day and no one made fun of me.

Sunday, September 06, 2009

Hydro Walk

So if you haven't heard already, I am going to be participating in my 1st Hydrocephalus Walk. It is in St. Louis on Sept. 20, if anybody wants to come you are more than welcome too. The walk is a great way to bring families together and offer support and also have other fun-filled activities. If you would like to sponsor me and donate, go to my fundraising page by clicking HERE. All donations are tax-deductible. 100% of the proceeds from this event will support Hydrocephalus Association and their commitment to driving research for the diagnosis and treatment of hydrocephalus and bringing this condition to the forefront of public attention. Thank you to all of you that have already donated. We greatly appreciate it.

Wednesday, September 02, 2009

New stroller

One of my birthday presents finally came in today. Mom and dad bought me a new stroller. My current stroller consists of a Kid Kart and an umbrella stroller. They both do their purpose but just don't meet all the requirements and easy access that mom wants. The Kid Kart offers all the support I need but is very bulky and honestly I have only used it as a stroller a few times for walks around the neighborhood. It is just so big to take it places and to get it in and out of the car is another story. So when we go places, we use my umbrella stroller. This stroller is very nice and compact; however it does not give me the support I necessarily need. The only problem we have with it is that I slouch in it. Mom even puts a piece of foam in the back of the stroller to give me a little more support for my back. So the research began on the perfect stroller for me. The result is perfect. I got a Maclaren stroller. This stroller is like an umbrella stroller but has a hard back. Within 30 minutes of the UPS guy dropping it off, mom and I was already walking around the block testing it out. It is so much more comfortable than the umbrella stroller.