I love that we live in the age of technology and the internet. After receiving Tyler’s diagnosis of Hydrocephalus, the internet allowed me to reach out to other family members living with this condition. 2 years ago we decided to turn our online friendship into an “In Real Life” friendship. We met 6 other families in Niagara Falls and decided that this needed to become a tradition of meeting up. So this year we decided to meet up in Nashville. Our group has grown since then and there were 16 families total that made the trip, traveling from all over the country – from Washington to Texas to Virginia. It was so good to see everybody again and met some new faces. I couldn’t ask for a better support system.
5 weeks ago